Piia Pauliina
  • scissors
    May 8th, 2010

    I went to the Royal Marsden to have my blood count checked yesterday, as I expressed my concern of being potentially neutropenic for Monday’s chemo.  I also wanted a doctor to have look at my mouth ulcers as they had been getting worse, and the pain was getting unbearable.

    It was a jolly good job I went, as I was neutropenic, and the advice was to do the boosters for the next three days before chemo.  If I had not gone to the Marsden, my chemo would have most definitely been delayed, again due to low white cell and neutrophil counts!  They have also modified my medication for the mouth, and I got this new oral suspension, called Sucralfate (Antepsin), which seems to sooth the mouth a bit.

    My ulcers are getting better, in my mouth anyway (my throat is still very sore).  Here is what has actually been helping in the end: increase the dose of Fluconazone from 50mg to 200mg; the Sucralfate as mentioned earlier; and combination of paracetamol and Tramadol (for the pain).  A Gelclair, oral rinse gel that I was given on Tuesday was too painful to take.  As was the antiseptic mouthwash I have been using.  Nystatin, an antifungal antibiotic did not make any difference. And Bonjela made me scream of pain when I applied that on my ulcers.  Obviously, I am also taking all my vitamins and trying to eat plenty of fruit and veg.

    Hopefully, my mouth is better by Monday, not only so that I can have the 4A PMitCEBO, but I also want to stop taking high doses of Tramadol, as they are making me feel so drowsy.