I am back at home.  Sorry for the late update.  I wrote for my blog on Friday at the hospital, please check that as well.

Well, I managed to get out of Homerton hospital on Monday afternoon.  I could not have been any happier.  I was beginning to start losing the will to live in that hospital.  One of the first things I noticed when I was at home, how quiet it was.  Hospitals are so noisy, and you simply do not get any rest there.  Which is ridiculous, as when you are poorly, that is when you need the rest the most!  I felt incredibly tired, physically and emotionally when I got home.

I went to the Royal Marsden yesterday to be reviewed.  My bloods were good.  The kidneys had fully recovered.  However, my mouth is FULL of PAINFUL ulcers, so they did not go ahead with the chemo.  Even though I hate delaying my treatment, I was pleased as I felt I could not take the treatment yesterday.  I felt I was not fully recovered, yet.  I was given medication for my mouth.

I was still quite traumatised by the Homerton experience yesterday, and kept bursting into tears whenever anyone asked me how I was.  The staff at the medical day unit are so lovely, a total opposite to the staff at the homerton.  I was overwhelmed by the kindness I received yesterday after how I had been treated in Homerton.  The sister in the unit was particularly amazing.  She was on her way to have her lunch, but when she saw me, probably looking quite different from the bright and bubbly person that I normally am, she came and sat down to talk to me.  The unit was extremely busy yesterday, but that did not stop her to spend proper time with me and to listen to me, and comfort me.  She decided to order me a taxi home on the department budget.  In the end, I was crying just because she was so kind, and had made such a massive difference to how was feeling.

I am at home, catching up with some sleep, and trying to fix this mouth of mine.  I am in a lot of pain, which is constant. I had to opt for tramadol, as paracetamol alone did not seem to make a significant difference.  Eating and drinking is extremely difficult, but I have been trying.  I can mostly only tolerate cold smoothies, which I drink with a straw trying to bypass the mouth as much as possible.  I have lost 2kg of weight already. I really cannot wait to have my mouth back to normal!