Piia Pauliina
  • scissors
    August 26th, 2010

    Sorry for my late blog update.  There has been very little to report.  I have been getting better, however very slowly.  So slowly that you can hardly notice it, unless you compare how I was when I first got out of the hospital.  I am still struck by how fatigued I feel al the time.  It is not due to my blood counts as they have been excellent: my latest haemoglobin was 12; white blood cells 4; platelets 147; and neutrophils 1.6.  As the neutrophils were so good, I can theoretically now eat pate, blue cheese and prawns! I have already had a bit of Gorgonzola and pate.  Yummy!

    My appetite is back to normal, and I enjoy most foods now.  I am just tired a lot, and feel weak.  It is annoying sometimes, as staying in, doing nothing can get utterly boring.

    I managed to go to a festival, the Green Man in Wales last weekend.  I decided it was too soon to camp, so Minna, Jukka, Daniel and I stayed in a gorgeous cottage, which was in the grounds of this beautiful, old mansion house.  It rained quite a bit, and the festival site was a bit muddy, which made it extra hard to trek in the mud in wellies for three days. My muscles are still recovering from that.  But, I managed the whole weekend, which gives me hope.  I have another festival planned for mid September, and the plan is to camp then.  I should be fine.

    I also want to go to Finland, but I have not managed to find a time slot for it.  I still need to go to blood tests regularly, and I am waiting to hear about my PET scan and bone marrow biopsy appointments, which should take place end of September.  Once all that is done, I can go!

    It rained a bit in Green Man. Here are Minna and I in our waterproof gear.

    This is the cottage where we stayed in Wales!

    Me standing in the grounds of the mansion house which is behind me.

    The front of the mansion house.

    Minna and I outside the mansion house, waiting for a taxi to take us to the festival site.

    The Green Man festival.

    Me in the festival. You can see the Welsh mountains in the background.

    My festival friends. From the left: Minna, Suzie, Ali, Shawn, Pat and Sam!

  • scissors
    August 3rd, 2010

    I am getting a little stronger every day, and my appetite has improved massively since I got out of the hospital.  I actually do not mind eating now!

    I went to Sutton to have my bloods checked yesterday, and they were in most parts very good.  The other good news is my LTS line is going to be removed tomorrow!!  Cyborg no more.

    I managed to go out for the first time in six weeks this Saturday gone.  There was a small festival, Field Day near us that my friend Tom organises and I managed to get VIP tickets to that.  It was a lovely day, and although I was sitting down most of it, I also managed to have a boogie!  The power of music. (Please see the pictures below.) I have been knackered today though.

    Oh, no time to rest as I am off to have dinner with Lisa, my housemate and her friends at our local pub, Cat & Mutton.  It is Lisa’s birthday you see!

    Me at the festival's hospitality area.

    Lisa, my Dream Housemate and I.

    Minna and I at the festival.

    Suzie and I.  It was a sunny Field Day, for once!

    Suzie and I. It was a sunny Field Day, for once!