Piia Pauliina
  • One year post diagnosis

    June 17th, 2010

    It was exactly a year ago when Megan the doctor came into my hospital room and brought the news of my diagnosis.  Back then I said ‘my life is about to change quite drastically’.  I was so right.  What a year it has been!  I can hardly recognise the person I was back then.  It has been amazing healing journey so far, and I have already learned so much about my ‘true’ self.

    I had the kidney and heart tests yesterday.  No big deal really, particularly as there are no special pre-test restrictions regards to what (not) to eat and drink beforehand.

    I spoke to the dietician whilst I was there in Sutton about my concerns about the hospital food.  She was reassuring and said there are several different kitchens and chefs in the hospital and they WILL find something I like eating.  She took one my dry fruit bars to be checked if I could bring those with me.  Sadly, they are not suitable as the fruit is not cooked and can grow bacteria.  When I am in the hospital, I will not be able to eat any fruit that cannot be pealed.  I am going to email her the details of my supplements to see if I can have any of those when I am in the hospital.

    I also went to the hospital PALS (Patient Advice and Liaison Services) office to ask help about my admission date, specifically the time, as I had not been told exactly when I needed to be there next Wednesday.  I was thinking, maybe I could get someone to drive me to Sutton on that day, since I am sure I will not be travelling light!  I was told I would not know the admission time until on that day.  I will basically have to pack my bags, be ready to go and wait for their phone call!  I might not even be admitted on Wednesday as it all depends if they have a bed available, and they will not know this until on the day.  I can understand why they are doing it this way, but boy it is so inconvenient!

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