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Methylprednisolone
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February 1st, 2010I quizzed my hospital team regards to the steroids (Methylprednisolone) that I get for five days starting on the 1st day of this chemo, GEM-P-R.
When I was getting the R-CHOP, I used to get 100mg of Prednisolone (also steroids) for five days, and did not suffer from major side effects. However, with this chemo, I get Methylprednisolone as part of the regime, and I have been getting very bloated, swollen face, insomnia and loads of excess fluid all over my body, all which make me feel incredibly uncomfortable.
Ever since the first GEM-P-R, I have asked the doctors why I need to have the Methylpredniosolone and not the Prednisolone. No one so far has been able to give me a clear answer, they just simply did not know. But, today, Michelle one of the ‘key nurses’ said she knew the professor who designed the GEM-P protocol, and she said she would ask him. Apparently, I would have to take 250mg Prednisolone per day to match the dose of Methylprednisolone.
No wonder, I have been getting these nasty side effects, as I am getting over twice as many steroids than before. Also, Methylprednisolone is actually part of this regime, not just there to support it. So, I suppose, I will just have to endure them.
3 Responses to “Methylprednisolone”
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Daniel Rodrigues
Hi,
It’s Daniel from WMUH… I have been diagnosed with Leukaemia on Monday morning and It is still a crazy roller coaster with new meds and lines and stuff. I just thought I would like to hear from you. I really wish your crusade would be coming to an end by now but I see there are still some battles to be fought.
I also get all bloated wgen I get steroids, and I get a wish to eat despite being already more than satisfied. Then I am just full and unconfortable/sleepy the whole day.
I wouls love to hear from you.
Daniel
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Dear Daniel,
I am so SORRY to hear your news. You must feel like your world has been turned upside down. If there is anything I can do, please just ask. I have become quite a chemo expert, so if you have any questions, do ask, and hopefully I can help.
Where are you going to be treated? You should really go to Maggie’s ASAP. They are great at giving practical and emotional support. They were so helpful in so many ways when I first got diagnosed.
Sending you bundles of love and healing vibes.
Piia
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Oh, here is my email address: piiaanteroinen@hotmail.com
